Tips for Dealing with Social Security Disability (MS)

Social Security Disability MS blog

MSlisaSAYS shares her experience with & tips for others living with MS, filing for Social Security Disability with the U.S. government.

Social Security Disability MS blog

TIP 1: Tell your doctor that you are planning on filing, and to please prepare the documentation that you may need.

I was fortunate that when I filed for disability, I had gotten some advice from a lawyer friend who worked with SSD. He suggested alerting your physician of your plans to file so his documentation will support your need. 

TIP 2:  Ask, remind and gather letters of support from friends and family that have direct observation on what you are experiencing, why there is a need and what your current resembles day-to-day, week-to-week– from their perspectives.

Have friends and family to write supporting letters of your condition from their observation of how you are doing, what you are not able to do, and how long you have been suffering with your disorder or disease.

Tip 3: Rely on your journal (if you don’t have one already–start one, today) to assist you in detailing accurately to SSD your symptoms and how they reflect your condition.

When completing the paper work, be specific with dates, times, and listing your symptoms, how long you have been experiencing your problems.  For a current list of symptoms to use as a reference, check here.  Use the data you have written down to assist you with this information. Be as detailed as possible.

Tip 4: Similarly to making your resume specifically reflect the position you are applying, make sure you use SSD’s criteria as the basis for your each of your application points. 

You can look at and it will give you a list of criteria that you can assess to see if you meet it for approval. Use this when completing your paper work. Be sure to use some of their descriptions for approval in your application.

Tip 5: The proof is in the pudding– they say.  So, reference your journal to assist you in providing SSD with as much information as possible relating to your treatment, diagnosis, testing and results. 

List all your physicians who have provided you with your diagnosis along with places where treatments, tests, or labs were taken to prove your case.

Tip 6: Take control of your own treatment and therapy, by keeping good documentation notes and records about what symptoms, treatment plans and what specifically your doctor finds important with each and every doctor visit.  

Keep copies of your medical records, so you know what specific things that your physician is documenting about your disease. Also good for second opinions.

Tip 7: Don’t allow the first “denied” result to stop you.  Many who finally obtain SSD assistance apply more than one time. Don’t allow pride or nervousness to stop you from you asking for help from those professional services that can help you attain the SSD you need.

Don’t give up! First applications are usually always denied, but keep going. There are people, lawyers or firms that are out there to help assist you obtaining approval; use them

Finally, use online Tools to help you Assess Your Multiple Sclerosis condition.  Click here for one that I find pretty strong.

Good luck in your application & as always contact me, if you have any questions or want to share your story living with MS or dealing with SSD.

MS Blogger and Multiple Sclerosis Activist shares her journey living with MS, tips for others living MS and her husband, Steve, offers his insight as a caregiver for MS.
  • stacy

    I am not giving up, but it it very flustering. I can’t drive anymore, I have to walk with a cane or a walker, none of the meds are working for me my body has a reaction to them all that I have tried yet I cant get disability. I don’t understand!