Week Two After Lemtrada Treatment


One thing never changes with MS

It has now been two weeks since the completion of my 5th dose of Lemtrada and the one thing that has remained the same with every dose is the fatigue that hits on the 7th day after the treatment. Like clockwork on that 7th day I woke up feeling really tired, but it didn’t hit me what day it was. I did exactly what I always do every morning was drink my usual two cups of coffee then hit the treadmill for my daily workout.  Every day since, there remains the daily fatigue, but I find it amazing still how much my workout really helps with this. This week, my husband has worked second shift  which means that he sleeps in of the mornings, putting me getting on the treadmill off until late morning. By the time I finally get on it, there seems to be “let’s make a deal” with God to help me get through the hour long walk. After about 10 minutes I can feel myself improving so therefore start to make the workout more difficult until I reach the goal that I set for that day.

It is funny how I remember what day the fatigue sets in but don’t remember exactly how long it lasts, but never the less each day regardless of how I am doing, the routine will continue. The nausea is gone, fortunately it was short lived, so my appetite is back and have been cooking healthy meals. I sent my husband to the store the other day to pick up some fresh veggies with squash being on top of the list. Bless his heart he came home with summer, acorn, butternut, and spaghetti squash; needless to say I am burning out on squash since he doesn’t eat it. Because I have eliminated fried foods from my diet, everything is either roasted, baked, or grilled. I am also keeping a close on my intake of calories, carbohydrates, sodium, and sugars in my diet.  The difficult part is that Steve doesn’t eat like I do and really doesn’t like the same vegetables so many times I am preparing two separate meals. He is a meat and potato man and I consume fish and chicken with a variety of fresh vegetables.

We had a beautiful taste of spring this past week and was able to spend a good deal of time outdoors but it has turned off cold again this week limiting my outdoor time. As I have stated in a previous post, the cold weather affects me negatively like the hot weather does, but at least the sun is shinning bright and that helps a great deal. I am very thankful for every day that I wake up and for being able to accomplish most of the things that I want to do. Many people have said prayers for us during all of this and I want to say thank you. I believe in the power of prayer and believe there is a purpose for all things we go through in life. My purpose is to remain strong and be supportive of anyone who is also suffering with MS; my hope is that I am doing that. As always I don’t worry about yesterday or tomorrow but concentrate on being the best that I can be on this day.



MS Blogger and Multiple Sclerosis Activist shares her journey living with MS, tips for others living MS and her husband, Steve, offers his insight as a caregiver for MS.